Kyleigh
Kyleigh
A passion for childcare and mentorship.
Imagine a place created for children living with heart defects to come together in the summer—not just to play and thrive—but to meet lifelong friends who share in their unique heart health experiences. Camp Odayin is that place. For Kyleigh, Camp Odayin holds a special place for her as she started attending at the age of nine as a camper and returned this year in a new role as a counselor, marking a significant transition and leadership milestone in her life.
Kyleigh lives with “half a heart”, or Tricuspid Atresia, Hypoplastic Right Heart Syndrome (HRHS) and Fontan circulation. While she faces certain limitations, such as the need to avoid extreme heat and strenuous physical activities, she has adapted to her daily routine with acceptance, and even gratitude. Taking regular breaks and planning activities ahead are strategies she uses to manage her condition.
Kyleigh’s passion for working with and mentoring children has transcended her time at camp and grown into a promising career in the childcare space. She currently serves as a before and after-school teacher at the recreation center in her hometown. She was recently promoted to a program director and looks forward to what the future of her career holds.
Kyleigh's mom, Crisse, ensured that from an early age she understood her condition and could navigate her life experiences with confidence. This empowerment allowed Kyleigh to advocate for herself in school and be proactive in managing her health. Kyleigh believes that providing age-appropriate information to children with congenital heart differences is essential for their self-advocacy in a world where even healthcare professionals are not always well informed.
Kyleigh has participated in clinical trials and encourages others to do the same, especially recognizing the potential impact for future generations. In her own words she conveyed that, “even if I can help just one other child have a better outcome, that is worth it to me.”
For Kyleigh, a major health win would mean more freedom and fewer limitations, especially allowing her to play a more active role with the children at her rec center. It may seem like second nature to others, but even the ability to be outside freely in the summer heat would be life changing for her. As a Face of Fontan, Kyleigh wants to show that with the right support and mentorship, any child can conquer hardships and navigate a rare condition.
